September 4th, 2008

From the beautiful heart of Veronica:

Ivy is beautiful and Ivy is sick. Ivy is only 2.

And yet, at age 2, Ivy has seen the inside of a hospital more times than anyone should have to. Ivy has a rare immune deficiency IgG. Because of that, she has Pemphigus which is an autoimmune response to the IgG These are horrible conditions that no adult should have to deal with, let alone a child.

Ivy is currently on Prednisone and Mycophenolate to help control her symptoms and blistering; however, these drugs suppress her immune system, on top of the deficiency.

Ivy’s mum says “…she was never good at mounting a response to infection but the meds make it worse.”

She frequently ends up in hospital on IV antibiotics, just to help control the infection in her ears that never seems to completely disappear. She cannot be exposed to a simple virus in fear that it will land her back in hospital for days at a time.

She can’t go to the playground to play.

She can’t attend playgroup.

She can’t head to the supermarket with her mother.

She might never be able to go to regular school.

She is only 2.

However, there is a treatment that would give Ivy a good chance at normal life.

It’s called IVIG (intravenous immunoglobulin) and it is a transfusion of immune cells that would bolster Ivy’s own immune system and help her fight infections in a normal way.

Think about it, a chance at a normal life. A life that doesn’t involve frequent hospitalisations.

Unfortunately, the officials at the Australian National Blood Authority have denied the request for Ivy to have this treatment. This treatment that could very well keep her out of hospital. So far, all appeals have been in vain.

As Ivy’s Mum says on her website:

“My little girl is going to have a life of hospital admissions and illness, some chronic, some life threatening, because some guy in an ivory tower decided she could survive without this medication.”

How is this fair?

What if it was your child? What if it was your sister’s child? Do the rules change for daughters of the officials? How come someone with a big stamp gets to say yes or no to this little girl’s chance at a normal life?

It shouldn’t be like this.

All I am asking for is 2 minutes of your time. If you could just head over here and sign our petition, we might be able to get enough support to convince the National Blood Authority officials to change their mind.

Ivy is only 2. She deserves a chance to be normal.

Please, a minute of your time could make all the difference for Ivy.
Sign Petition

If you have a blog and you would like to help spread the word, please feel free to copy this post and link back to Veronica at Sleepless Nights [so that I can follow where it has gone].

And if you would like to follow Ivy’s story (and that of her twin brother and older siblings) you can find them here, at My Three Ring Circus, written by the talented Tiff. All photos were taken by Tiff as well.

This entry was posted on Thursday, September 4th, 2008 at 8:41 am and is filed under What's this?. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.

13 Responses to “Little Ivy”

lceel Says:

I signed the petition over at Veronica’s. And I’m going to link back to the post in tomorrow’s post. i wish there were a way to do more.

lceels last blog post..To, To, Tuesday

Jenny Says:

Done! I really, REALLY hope it helps.

Jennys last blog post..Woody and The Beaver

teeni Says:

Well, if that wasn’t easy I don’t know what was. I hope it gets Ivy and her family some relief from all the hospital business.

Melissa from pittsburgh Says:

I posted about Ivy too … I don’t get many readers but every little bit helps!

Poor poor Ivy…and poor poor mommy of Ivy!

Melissa from pittsburghs last blog post..Wordless Wednesday

Krissa Says:

I signed and left a scathing comment on the petition. Truly a horrible thing to have happen to a child.
I will link back in my next post.

Krissas last blog post..No sex….but an owl!

Veronica Says:

Thankyou so much. SO MUCH.

Veronicas last blog post..Ivy Girl

frogpondsrock Says:

*waves hello*

frogpondsrocks last blog post..I don’t like green snakes.

christy Says:

Glad to do it!

Hope she benefits….

The Over-Thinker Says:

I saw this on Ree’s site, too and I’ve signed. I sure hope this works. Poor little girl.

The Over-Thinkers last blog post..Welcome to the Freakshow! Have a seat, ya Nutbag.

kaylee Says:

Awww I will go do it

kaylees last blog post..Letter to Mary

Dutch Blitz » Little Ivy Says:

[...] Grace clued me into the story of Ivy, as told by her mom Tiff.  Ivy needs medical attention which is being withheld.  There is a petition to sign in order to try and get Ivy the care that she needs. Sign it, please, if you could take a moment. [...]

Old Knudsen Says:

I hate posts like this that leave you feeling so useless. I hope she gets the treatment.

Old Knudsens last blog post..100 Things To Do And Then You Can Die » The owls are out to get me. Says:

[...] you head on over to Psychicgeek, Witchypoo has written a very moving post about Ivy, a two year old little girl that is desperatly [...]